So I had my follow up today and got good news!! My echo showed that my pressures are a little bit lower (the systolic was 91 and now it's 77, the mean was 58 and now it's 52). Severe PH is classified as a mean greater than 55 so I am just below severe. Still a long way to go but the numbers are going in the right direction! Also my right heart function has improved and I was able to walk farther on the six minute walk. He said that they look for people to walk about 45 feet more than they did before meds and I walked 60 so he was very happy with that! Overall he said "I give you two thumbs up!" Coming from someone who was so grim and dire when I first met him, this means alot :) He wants me to continue as is for the next two months and then I will go back and see him again. He said he thinks the Revatio will keep improving my numbers. If not he will increase the dose, change the med or add another med - there are lots of options which is great! I am hoping this continues to work because I am tolerating it very well - no side effects! The only bad news of the day was he doesn't want me lifting Ashleigh or going back to work :( I asked if he thought I would ever get to go back or should I look for something else. He told me not to jump on anything yet, give it some more time and we will reevaluate in September. We'll see - it kinda sucks not having a paycheck. Thank God for my mom - don't know what we would do without her. And for my dad for letting her stay here for so long! I know it's hard and they miss each other :(
The fundraising is going well - $1,120 so far!! Thanks so much for all the contributions - every little bit helps to find a cure!
